Never Give Up

 

I learned just how true this is recently when I reached out, with the help of my parents, to a group of people who we thought might be interested in joining us in hope.

During my initial consultation with my Sarcoma Oncology Specialist at University of Pennsylvania I learned about their Sarcoma Research Foundation that is raising awareness and funds to help finance clinical trials and work towards efforts to eventually find cures for this rare type of cancer. 

I am overwhelmed beyond words at how generous you all have been and how impactful your donations will be to the work being done. 

When I was first diagnosed I truthfully didn't have hope. I couldn't see past the diagnosis and statistical prognosis. If I'm being raw in my honesty, I didn't see the point of my treatment.

But with time, tremendous support, many (many) hours of therapy, and excellent Palliative care teams I now hold hope carefully in the palm of my hands - like a rare gift.

Just ten years ago, I guess eleven now, my treatment - that's working beautifully - didn't even exist.

Today, I get to say I'm in metabolic remission because of the medical advances of the medication I'm on. And while I've shared the average efficacy is just nineteen months long, I feel it's possible (as do my doctors) that I could experience years of success with it. 

And now, when it does fail, I feel exceptionally hopeful there will be more options. 

Thank you to everyone who has contributed. There are not enough words to express how much it means and if you have not yet had a chance to donate and still want to here is the link.

Together, we have raised over $5,000 and I'm so proud of and grateful for it.