Tuesday, June 24, 2025
I am the luckiest.
Wednesday, June 11, 2025
The wait is the worst
This last ten days have been hard, much harder than I let on to most. The waiting and wondering about a new health challenge was a lot to manage emotionally.
And while I am writing to say I finally have the results and I do not have breast cancer - which is amazing - I want to acknowledge those who waited with me.
Monday, June 9, 2025
Don't tell me I'm too young for this
My PET CT scan that revealed an area of concern, prompting the first of five different scans or tests (including a biopsy), took place on April 24, 2025. So for those who check every so often to hear the latest updates and musings from me (thank you), you now know why I've been so quiet on my blog. It's not to create a sense of drama that I have held off on sharing this part of the journey. It's that I do not see the point in telling however many of you there are I'm facing a possible additional diagnosis until I know enough to warrant the details being shared.
Monday, June 2, 2025
Gratitude & Grace
It's hard to be 'grateful' for PET CT scans. I have them every eight weeks or so. Overall, they're not really that bad. I can't eat that morning which on any given day is no big deal and on another is a bummer. It's time consuming. But I live really close to the medical facility, so it's not that bad. And they're always on schedule (we all know that's pretty miraculous). It's one of the many occasions I get poked at with a needle each month - which for anyone is never enjoyable and for me can be a challenge. Especially if you took away my ability to hydrate.
Not the worst experience, certainly...but grateful....that's probably going a tad too far.
With that said, I became grateful for my most recent PET CT scan. Because it highlighted another area of concern. One that most certainly would not have been found until whatever it ends up being was much more than whatever it is now.
Just not 'nothing' enough to stop the testing, scanning, and poking.
I'm now grateful no one told me it might not have worked at all. I guess that seems obvious in hindsight; but it never occurred to me it wouldn't work. I've been more consumed by how long until it doesn't work anymore.
A few days before the next test, an MRI of the right breast, the pain in my liver started creeping back into my life. So did the nausea. And if you've ever had a breast MRI you know the position of the scan puts you face down. My upper abdominal area didn't appreciate that. It's just 23 minutes of scanning. But getting up off that machine was a challenge.
It's not my nature to pick up the phone and call someone for support when I'm sad or scared. Not initially. My MO is to sit quietly, to settle into my own thoughts and feelings about something. And maybe more profoundly, my choice not to involve anyone is most definitely because I never want to create drama - particularly around an unknown. And at this point, there's still unknowns.
But I called someone who has become an incredible friend, someone who I subconsciously knew would probably drop everything and beeline for my house without my having to ask. And she did.
She let me cry and she held my hand and she allowed me to release more than four months of sadness, fear, pain, and disappointment into the room. Despite the unknown. Despite the fact that even if this is yet another terrible challenge I may be faced with, it was caught early and won't be nearly as awful as what I'm already going through. Her grace in that moment let me feel all that was rising to the surface and spilling over. She assured me it's okay to have reached a point where it's all too much.
Which allowed me to see:
Friday, April 25, 2025
The trick is you gotta name things that don't suck
I'm told my absence from writing is starting to become noticeable. That's actually generous of you all...I appreciate so many (even if it just feels like many) sticking around for the story. We all know there's plenty to do in a day (for most) and more than enough content out there to keep you occupied if you're in search of it. I'm flattered to be on your list of things to consider with respect to how to use your time every so often.
My brain has felt like the image above. Some days that curricular mess of confusion and unmistakable pattern of meaningless scratches is how my body feels too. And, well, some days just suck.
It's a sizeable pill. One I get tasked with reordering every seven to nine days (which - for the record - is absolutely annoying and not always as simple as a few clicks on my device). And it requires me to eat first, which is also not always something I'm interested in. Perhaps that would be something to work around except it needs to be taken at the same time everyday.
But mostly the reason I ** dislike it so much
**
For the last several weeks, I simply became sick of my own story. Which makes sitting down to tell it, even a small part of it, about as unappealing as my breakfast on certain days (that's the time of day I selected for my cancer treatment).
Tuesday, April 22, 2025
Chatter about my imperfections
Through this blog, one thing has become clear (correct me if I'm wrong): I have cancer. And this blog, as noted, is chatter about life's imperfections. So I thought for kicks I'd share a few (other) imperfections about me. Because I'm more than just a girl with cancer. I'm a quirky girl with cancer.
I'd like to think of myself as relatively normal but we all have our imperfections and idiosyncrasies...
Life is not good for me when I'm sleep deprived. I need a minimum of seven to eight hours a night. Without it, there are serious problems.
* I'm that girl who tells you what time it is and how they built the clock. In (several) other words, I take what could be simply stated and use too many words. I talk too much. I take too long to tell a story. I love details. But you knew what I meant with the first sentence.
Tuesday, March 25, 2025
When time is limited
Oliver and I were meant to be in each other's lives. I discovered his sweet face on one of those websites that offers pets for adoption. I knew two things - we needed to meet, and I would need to change his name. He wasn't a Roscoe.
And it was love at first sight. While the woman at the animal rescue wanted me to meet eight or nine small puppies running around, I knew I'd come for him. He was in another area at least 75 yards away, behind a three or so foot fence, and when we locked eyes he literally climbed the fence and bolted over to me.
Meant to be.
He turned ten years old last fall, and this spring we will celebrate our ten years together.
Almost two years ago, I wasn't sure that would be possible. He was struggling to walk, to breath, and he had lost so much weight. An exploratory procedure allowed for the discovery of PLE. Protein Losing Enteropathy has been a battle for both of us since July 2023.
Oliver and I have climbed our way out of some pretty devastating and challenging times. From divorce, and the loss of his other best friend, a second dog that stayed with her dad, to two surgeries for him and four for me, many moves and changes, and some great losses.
And we've thrived together as well. From countless beach trips, walks, snuggles, and visits with friends and family, we have taken full advantage of being each's others everything. We know each other by heart.
More than ever before, these last two months has proven we were meant to be in each other's lives. Regular testing and visits with his internist have confirmed, just as I begin to truly face my own terminal illness, his personal battle (and ours together) is coming to an end in the next few months.
Saturday, March 22, 2025
Just say 'Hello'
However, for the most part food is not my love language (except cake of the gluten free variety). If you're up to speed you know about my auto immune disease which took gluten out of my life. My food allergies list is three pages long. (yep, I'm as fun as I sound).
So that's my answer: Just say 'Hello'
Whether you text me, email me, message me online (because we work together), call me, offer to take a walk with me (assuming you're local), or drop a card in the mail (assuming you have my address which I'll give you if you ask but I'm not putting it here obv.) that's going to light me up and improve the chances my day will go better.
And so many of you reading this blog are already doing that. So I guess my reason for writing this is not to specifically give those of you in my life advice on what to do for me. It's more a gentle reminder that when people hurt, they are lonely, sad, lost, or life isn't making any sense whatsoever, a 'hello' (which can be totally free of cost and generally requires a light lift) will likely make a very significant difference.
It might turn the light back on that day, in fact.
*I mean, if you have eight million dollars...I'll take some of that too. You don't need to bring me any coffee though. I'm allergic to that as well.
Thursday, March 20, 2025
Asking & Answering the hard questions
There are some people in my life who aren't afraid to ask me the hard questions. I actually don't mind it. What are the hard questions, you may be asking...
Well, 'hard' is subjective of course but to them it's questions such as how I'm thinking about life now that I'm aware the clock started on my countdown to when someday I'm not here and the journey ends. Or what I'm feeling about a treatment that will only work for a limited time.
Not as limited as a sale at Nordstrom's but limited, nonetheless.
And I don't mind those questions at all because it tells me two things - they are willing to acknowledge I'm probably thinking about it (at least at some level) and they're opening up to the uncomfortable conversation about how life - yours and mine - doesn't last forever.
Which begs the question: why is it so uncomfortable to talk about life ending when we all at the very least intellectually can acknowledge that is the way it works.
I can't answer that question for you.
I've had no less than three highly educated, exceptionally intelligent, incredibly experienced doctors (two of whom have so many degrees you wonder how they found the wall space to display the proof) look me directly in the eye and explain the realities about my disease and how long I can (statistically) expect to live.
And I still can't answer the question of why we, as human beings, can't wrap our minds around the fact that it'll happen to all of us. And we all know for so many it'll happen sooner than later. We just do not expect it to be us.
And with that heavy psycho-babble out of the way, I think I should tell you a story. It's short, don't worry.
I spent almost two years completely aware that something was terribly wrong with me back when I was in my early 30s. I just didn't know what the problem was for a long time.
I had weird symptoms like a constant film on my teeth, unfortunate but familiar symptoms like foggy brain, and digestive issues that could compete with just about anyone. I'm trying to be real here but we're leaving that right there.
It took a lot of wasted doctor appointments, failed attempts at elimination diets (that's not true - I didn't fail them all, I just didn't always learn something), and losing my dignity to figure out I had Celiac disease.
When I finally got the call on August 7, 2013 from a doctor who had begrudgingly tested me for it to tell me it was positive, I sat for at least three or four hours as the light in the living room faded away into evening, just stunned. But of all the things I probably thought about in the silence of that day, I only really remember thinking about the two foods I would miss the most.
Pizza & Birthday cake. I love cake.
Do you want to know what I thought of pretty soon after I learned I likely won't see 50 due to this cancer diagnosis?
I have always wanted to live in one of those 55 and older housing complexes. Well, at least since my divorce. I'm serious. In some ways I'm so much like a typical bachelor. I completely dislike cooking (mostly I'm impatient when I get hungry and I don't want to clean up the kitchen when I'm finished), it would mean making so many new friends (which let me tell you can be very hard to do at my age, especially when you're single and have no children), and they do the lawn work and maintenance for you (I'm lacking a green thumb).
So this is crushing.
Now. If you know me well, you know I expect you to both take me seriously and finish reading this post laughing (at me or with me, take your pick.) I'm trying to lighten the mood here friends.
On the upside, perhaps I don't need to be quite as concerned with wrinkles and I can save the money going toward those products for a trip to the beach.
I love the beach.
If you're willing to ask hard questions, I'm willing to answer them. Or at least discuss ways to get them to lower that 55 year old age requirement.
Tuesday, March 18, 2025
What is Palliative Care?
I've mentioned the term Palliative Care a few times now, so I thought it might be best to help define it for those who are less familiar with it.
The definition: Palliative care is specialized medical care for people living with a serious illness. It has four key goals for patients, and in some cases, their families
- Relieving suffering
- Improving quality of life
- Providing emotional and spiritual support
- Facilitating communication and decision-making






























